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« on: December 20, 2018, 06:20:25 am »
I've posted on here before about Elderly Relative with the dementia diagnosis - who continues to live alone, although now in sheltered housing. Elderly Relative's Spouse, now dead, never had an official dementia diagnosis, but when I looked up vascular dementia on Dr Google, and found 14 listed symptoms, Spouse had 9 of them, and eventually Spouse's nursing home moved her from the main wing to the dementia wing, saying apologetically that it might not be dementia, but that since the behaviour was indistinguishable from dementia, that was the safest place for her to be.
Regarding both of them, I absolutely hear you about old, cranky, in pain, and taking stubbornness to previously unrecognised limits. I also know the thing about who copes best - in my case, these are relatives by marriage, not by blood, and I suspect that I cope better because I have an extra degree of distance. This is not my father so although I can and do grieve for the man who is slipping away, I don't have the deep attachment that goes 'this is my dad who is supposed to love me unconditionally and he says that?'
My DH and I hold power of attorney for ER, although we haven't invoked it - ER is mostly competent to manage his own affairs, but he manages them badly. But (in the UK at least) that isn't cause for the POA holder to take over. The person is allowed to make bad decisions as long as he understands the likely consequences of those decisions, the same as anybody with full mental capability. He doesn't even have to be able to remember that he made the decision. When he first got his dementia diagnosis, and asked us to take the POA, I went to an information session set up by a dementia charity, and they also said the things mentioned in the article: don't be too quick to correct them, particularly over things like who's dead; try to enter their reality because they aren't coming to yours; try not to take things personally.
The course leader described dementia as like Christmas tree lights: most of the lights are on but one or two are flickering - so sometimes Auntie knows quite well who you are, and sometimes she calls you by your sister's name, or your mother's name. Then one of the flickering lights fails, and she doesn't know who you are at all, although she may remember your sister quite well. She also told us that in many cases advanced dementia is like the course of somebody's life running backwards, so if Granny calls you by your mother's name, it's because she's lost the latest years, so she'll call you by the name of the person who was the age you are now, back in whenever she's living now, if you see what I mean. You're an important female relative, she knows that, and the important female relative is her daughter, so that's you.
I agree with Lynn2000 about inherent behaviour being let loose, too. I don't think that in general people change much as they age, they just become a more concentrated version of what they were before, so somebody who was sharp tongued becomes bitter, somebody who was short tempered becomes plain angry, etc.
A friend of mine whose father had dementia for several years said that she had been very shocked when he started using racist terms, which she couldn't ever remember him using before. However, as he retreated into his youth, she realised that he was simply using the vocabulary with which he had grown up, and which he had given up as society did.